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A Natural History Study of the Gangliosidoses

Abroad (travel likely)Recruiting

Conditions

Tay-Sachs Disease · Sandhoff Disease · Late Onset Tay-Sachs Disease · GM1 Gangliosidosis · GM2 Gangliosidosis

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations

  • University of Minnesota - Pediatric Genetics and Metabolism, Minneapolis, Minnesota, United States

    Contact: Study coordinator (Jeanine R. Jarnes, PharmD) · utzx0002@umn.edu · 612-626-5131
    Contact: Principal Investigator (Jeanine R. Jarnes, PharmD)
    Chester B. Whitley, MD, PhD (Sub-investigator)
Study leads

  • Jeanine R. Jarnes, PharmD

    Principal Investigator

    University of Minnesota - Fairview

View source on ClinicalTrials.gov(opens in a new tab)Contact study team (email)