BetterLife FSHD: A Patient-driven Health and Research Platform
Abroad (travel likely)Recruiting
Conditions
FSH · FSH Muscular Dystrophy · FSHD - Facioscapulohumeral Muscular Dystrophy · FSHD1 · FSHD · FSHD2 · Facioscapulohumeral Muscular Dystrophy · Facioscapulohumeral Muscular Dystrophy 1 · Facioscapulohumeral Muscular Dystrophy 2 · Facioscapulohumeral Muscular Dystrophy (FSHD) · Muscular Dystrophy, Facioscapulohumeral
Simple summaryAI-assisted
This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.
Locations
FSHD Society, Randolph, Massachusetts, United States
Contact: Study coordinator (Kayleigh Worek, Program Manager, MS) · betterlife@fshdsociety.org · 781-301-6060
Study leads
Amanda Hill, MBA
Principal Investigator
FSHD Society