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Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

Abroad (travel likely)Recruiting

Conditions

Myotonic Dystrophy · Facioscapulohumeral Muscular Dystrophy · Muscular Dystrophy · Myotonic Dystrophy Type 1 · Myotonic Dystrophy Type 2 · Congenital Myotonic Dystrophy · PROMM (Proximal Myotonic Myopathy) · Steinert's Disease · Myotonic Muscular Dystrophy

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations

  • University of Rochester Medical Center, Department of Neurology, Rochester, New York, United States

    Contact: Study coordinator (Registry Coordinator) · dystrophy_registry@urmc.rochester.edu · 888-925-4302
    Contact: Principal Investigator (Richard T. Moxley, III, MD)
    Rabi Tawil, MD (Sub-investigator)
    Charles Thornton, MD (Sub-investigator)
Study leads

  • Johann Hamel, MD

    Principal Investigator

    University of Rochester Medical Center, Department of Neurology

View source on ClinicalTrials.gov(opens in a new tab)Contact study team (email)