Rett Syndrome Registry

Abroad (travel likely)Recruiting

Conditions

Rett Syndrome · Rett Syndrome, Atypical · Genetic Disease · Genetic Diseases, X-Linked · Intellectual Disability · Neurobehavioral Manifestations · Neurologic Manifestations · Neurologic Disorder · Neurodevelopmental Disorders · Nervous System Diseases

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations

University of Alabama, Birmingham, Alabama, United States
Contact: Study coordinator (Emily Wignall) · emily.wignall@childrensal.org · (205) 638-2551
Children's Hospital Los Angeles, Los Angeles, California, United States
Contact: Study coordinator (Payal Gu) · Rettclinic@chla.usc.edu · (323) 361-2471
UCSF Benioff Children's Hospital, Oakland, California, United States
Contact: Study coordinator (Grace Sobrero) · grace.sobrero@ucsf.edu · (510) 428-3590
Rady Children's Hospital - San Diego, San Diego, California, United States
Contact: Study coordinator (Karen Ditslear) · kditslear@health.ucsd.edu · 858-966-5819
Children's Hospital Colorado, Denver, Colorado, United States
Contact: Study coordinator (Tim Benke) · rettclinic@childrenscolorado.org · (720) 777-4798
Nicklaus Children's Hospital, Miami, Florida, United States
Contact: Study coordinator (Paula Schleifer) · rettclinic@nicklaushealth.org · 305-666-6511
Rush University Medical Center, Chicago, Illinois, United States
Contact: Study coordinator (Emma Citow) · emma_citow@rush.edu · (312) 942-3034
Kennedy Krieger Institute, Baltimore, Maryland, United States
Contact: Study coordinator (Constance Smith-Hicks) · geneticsclinic@kennedykrieger.org · (443) 923-2778
Boston Children's Hospital, Boston, Massachusetts, United States
Contact: Study coordinator (David Lieberman) · rettresearch@childrens.harvard.edu · (617) 355-2063
Gillette Children's Specialty Healthcare, Saint Paul, Minnesota, United States
Contact: Study coordinator (Art Beisang) · phalenpedsclinic@gillettechildrens.com · (651) 228-6455
Washington University in St. Louis, St Louis, Missouri, United States
Contact: Study coordinator (Robin Ryther) · rett@email.wustl.edu · (314) 454-6120
The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, United States
Contact: Study coordinator (Yulissa Gonzalez) · yulissa_gonzalez@neurology.unc.edu · (984) 974-7337
Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States
Contact: Study coordinator (Rochelle Witt) · rett@cchmc.org · (513) 636-4222
Nationwide Children's Hospital, Columbus, Ohio, United States
Contact: Study coordinator (Christopher Beatty) · rettsyndromeclinicadmin@nationwidechildrens.org · (614) 722-4625
Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States
Contact: Study coordinator (Eric Marsh) · dl-rettsyndrome@chop.edu · (267) 426-1242
Greenwood Genetic Center, Greenwood, South Carolina, United States
Contact: Study coordinator (Fran Annese) · fran@ggc.org · (864) 941-8100
Vanderbilt Kennedy Center, Nashville, Tennessee, United States
Contact: Study coordinator (Cary Fu) · rettclinic@vumc.org · (615) 936-5536
Children's Health, Dallas, Texas, United States
Contact: Study coordinator (Dallas Armstrong) · dallasneurologyclinic@childrens.com · (214) 456-2768
Texas Children's Hospital, Houston, Texas, United States
Contact: Study coordinator (Bernhard Suter) · bbc@texaschildrens.org · (832) 822-7388

View source on ClinicalTrials.gov

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