Pompe Pregnancy Sub-Registry
Conditions
Glycogen Storage Disease Type II (GSD-II) · Pompe Disease (Late-onset) · Glycogenesis 2 Acid Maltase Deficiency
Simple summaryAI-assisted
This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.
Locations
Barrow Neurol Group- Site Number : 840087, Phoenix, Arizona, United States
University of Florida Pediatrics Genetics- Site Number : 157138, Jacksonville, Florida, United States
Emory University School Of Medicine- Site Number : 840060, Atlanta, Georgia, United States
Indianapolis University School of Medicine- Site Number : 840027, Indianapolis, Indiana, United States
University of Iowa- Site Number : 150294, Iowa City, Iowa, United States
Spectrum for Health- Site Number : 840019, Grand Rapids, Michigan, United States
Washington University- Site Number : 150612, St Louis, Missouri, United States
New York University School Of Medicine- Site Number : 840040, New York, New York, United States
Mt. Sinai School of Medicine- Site Number : 840005, New York, New York, United States
Columbia University Irving Medical Center- Site Number : 157199, New York, New York, United States
Duke University Medical Center Genetics Dept- Site Number : 840037, Durham, North Carolina, United States
LSD Data Registry Site LLC- Site Number : 840094, Dublin, Ohio, United States
Oregon Health and Science University- Site Number : 840095, Portland, Oregon, United States
Greenwood Genetic Center - Greenville- Site Number : 151184, Greenville, South Carolina, United States
O & O Alpan- Site Number : 840025, Fairfax, Virginia, United States
Investigational Site Number : 151069, Westmead, New South Wales, Australia
Investigational Site Number : 056001, Ghent, Belgium
Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 150978, São Paulo, Brazil
Investigational Site Number : 1910001, Zagreb, Croatia
Investigational Site Number : 1910002, Zagreb, Croatia
Investigational Site Number : 2030001, Prague, Czechia
Investigational Site Number : 152200, Bonn, Germany
Investigational Site Number : 380005, Florence, Firenze, Italy
Investigational Site Number : 380007, Milan, Milano, Italy
Investigational Site Number : 380011, Padua, Padova, Italy
Investigational Site Number : 380015, Rome, Roma, Italy
Investigational Site Number : 380008, Brescia, Italy
Investigational Site Number : 380006, Cagliari, Italy
Investigational Site Number : 380004, Genova, Italy
Investigational Site Number : 380013, Messina, Italy
Investigational Site Number : 380009, Monza, Italy
Investigational Site Number : 380002, Padova, Italy
Investigational Site Number : 380003, Pavia, Italy
Investigational Site Number : 380012, Roma, Italy
Investigational Site Number : 87147, Cardiff, Cardiff [Caerdydd Gb-crd], United Kingdom
Study leads
Study Director
Genzyme, a Sanofi Company