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KHENERFIN Study: A Trial to Evaluate the Efficacy and Safety of Sonlicromanol in Primary Mitochondrial Diseases

Abroad (travel likely)RecruitingPHASE3

Conditions

Mitochondrial Diseases · Maternally Inherited Diabetes and Deafness (MIDD) · Mitochondrial Encephalomyopathy, Lactic Acidosis and Stroke-like Episodes (MELAS) · Mitochondrial DNA tRNALeu(UUR) m.3243A<G Mutation

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations

  • Massachusetts General Hospital, Boston, Massachusetts, United States

    Contact: Study coordinator (Erica Kelly) · elkelly@mgh.harvard.edu · 617-724-7726
    Contact: Principal Investigator (Amel Karaa, Dr.)

  • Cleveland Clinic Neurological Institute Mellen Center, Cleveland, Ohio, United States

    Contact: Study coordinator (Jamie Jobson) · jobsonj@ccf.org
    Contact: Principal Investigator (Sumit Parikh, Dr.)

  • The University of Texas Health Science Center at Houston, Houston, Texas, United States

    Contact: Study coordinator (Lindsey Miller) · lindsey.b.miller@uth.tmc.edu · 713-500-7143
    Contact: Study coordinator (Antoinette Bernal Tent) · antoinette.w.bernaltent@uth.tmc.edu · (713) 500-6991
    Contact: Principal Investigator (Mary Koenig, Dr.)
    Sam Nicholas Russo, Dr. (Sub-investigator)

  • Rigshospitalet, University of Copenhagen, Kopenhagen, Region Sjælland, Denmark

    Contact: Study coordinator (Emma Roerbaek Larsen) · emma.roerbaek.larsen.01@regionh.dk · +4535453545
    Contact: Study coordinator (Pia Hynne) · pia.hynne.02@regionh.dk · +4535457357
    Contact: Principal Investigator (Nicolai Rasmus Preisler, Dr.)

  • CHU de Bordeaux - Hôpital Pellegrin Service Gynecologie Obstetrique, Bordeaux, Gironde, France

    Contact: Study coordinator (Ndeye Fatou Ngom) · ndeye-fatou.ngom@chu-bordeaux.fr · +33557820348
    Contact: Study coordinator (Samira Madi Radjabou) · samira.madi-radjabou@chu-bordeaux.fr · +33540451129 x51129
    Contact: Principal Investigator (Aurelien Trimouille, Dr.)

  • Groupe Hospitalier Pitie-Salpetriere - Charles-Foix Clinical Investigation Center Paris-Est, Paris, Paris, France

    Contact: Study coordinator (Sarah Taieb Tamacha) · sarah.taieb-tamacha@icm-institute.org · +33473750750
    Contact: Principal Investigator (Fanny Mochel, Dr.)

  • Klinikum der Universität München Friedrich-Baur-Institut, München, Germany

    Contact: Study coordinator (Natalie Adriana Villalobos Trigueros) · natalie.villalobos@med.uni-muenchen.de · +49 89/4400-57402
    Contact: Principal Investigator (Thomas Klopstock, Prof. Dr.)
    Boriana Buechner, Dr. (Sub-investigator)

  • Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy

    Contact: Study coordinator (Roberta Piazza) · roberta.piazza@istituto-besta.it · +39223942113
    Contact: Principal Investigator (Costanza Lamperti, Dr.)

  • Radboud University Medical Center, Nijmegen, Gelderland, Netherlands

    Contact: Study coordinator (Evertine Abbink, MD, PhD) · evertine.abbink@radboudumc.nl · +31 24 3618819
    Study coordinator · evertine.abbink@radboudumc.nl
    Contact: Principal Investigator (Mirian Janssen, MD, PhD)

  • University College London Hospitals NHS Foundation Trust National Hospital for Neurology and Neurosurgery, London, Greater London, United Kingdom

    Contact: Study coordinator (Laura Berg) · laura.berg1@nhs.net
    Contact: Principal Investigator (Robbert Pitceathly, Dr.)
View source on ClinicalTrials.gov(opens in a new tab)