A Natural History Study of RYR1-Related Disorders

Abroad (travel likely)Recruiting

Conditions

Ryanodine Receptor 1-Related Myopathy · Ryanodine Receptor 1 Related Disorders

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations

National Institutes of Health Clinical Center, Bethesda, Maryland, United States
Contact: Study coordinator (Irene Chrismer) · irene.chrismer@nih.gov · 240-591-8884
Contact: Study coordinator (NIH Clinical Center Office of Patient Recruitment (OPR) · ccopr@nih.gov · (800) 411-1222

Study leads

Tokunbor A Lawal, C.R.N.P.
Principal Investigator
National Institutes of Health Clinical Center (CC)

View source on ClinicalTrials.gov Contact study team (email)