Comprehensive HHT Outcomes Registry of the United States (CHORUS)

Abroad (travel likely)Recruiting

Conditions

Hereditary Hemorrhagic Telangiectasia · Arteriovenous Malformations · Telangiectasia · Epistaxis · GastroIntestinal Bleeding · Cerebral Arteriovenous Malformations · Vascular Malformation

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations
  • University of Alabama at Birmingham, Birmingham, Alabama, United States

    Contact: Study coordinator (Josie Harris, BSN, RN) · jcrespo@uabmc.edu · 205-996-9647
    Contact: Principal Investigator (Jesse Jones, MD)
  • University of California, Los Angeles, Los Angeles, California, United States

    Contact: Study coordinator (Niloofar (Lily) Sheshebor) · nsheshebor@mednet.ucla.edu · 310-562-9752
    Contact: Study coordinator (Victoria Rueda) · vrueda@mednet.ucla.edu · 310-562-9694
    Contact: Principal Investigator (Justin McWilliams, MD)
    Lucas Cusumano, MD (Sub-investigator)
  • University of California, San Francisco, San Francisco, California, United States

    Contact: Study coordinator (Bridget Kilbride) · bridget.kilbride@ucsf.edu · 415-514-6221
    Contact: Principal Investigator (Steven Hetts, MD)
    Miles Conrad, MD (Sub-investigator)
  • University of Colorado, Denver, Aurora, Colorado, United States

    Contact: Study coordinator (Johan Allingmon) · johan.allingmon@cuanschutz.edu · 303-724-6052
    Contact: Principal Investigator (Peter Hountras, MD)
    Todd Bull, MD (Sub-investigator)
  • Yale University, New Haven, Connecticut, United States

    Contact: Study coordinator (Katharine Henderson) · katharine.henderson@yale.edu · 203-737-1427
    Contact: Principal Investigator (Jeffrey Pollak, MD)
  • Augusta University, Augusta, Georgia, United States

    Contact: Study coordinator (Melissa James, RN) · mejames@augusta.edu · 706-721-5599
    Contact: Principal Investigator (James Gossage, MD)
  • Massachusetts General Hospital, Boston, Massachusetts, United States

    Contact: Study coordinator (Mamary Kone, MD, MPH) · mkone@mgh.harvard.edu · 617-724-0536
    Contact: Study coordinator (Jack Bamford) · jbamford@mgh.harvard.edu · 617-724-0536
    Contact: Principal Investigator (Josanna Rodriguez-Lopez, MD)
    Allison Witkin, MD (Sub-investigator)
    Alexandra Wong, MD (Sub-investigator)
  • Mayo Clinic, Rochester, Minnesota, United States

    Contact: Study coordinator (Greg Schwichtenberg) · Schwichtenberg.Greg@mayo.edu · 507-255-1245
    Contact: Study coordinator (Sue Ann Donlinger) · Donlinger.SueAnn@mayo.edu · 507-284-9259
    Contact: Principal Investigator (Vivek Iyer, MD)
  • Washington University School of Medicine, St Louis, Missouri, United States

    Contact: Study coordinator (Melissa Beasley, AA) · beasleym@wustl.edu · 314-273-5922
    Contact: Study coordinator (Kristine Kempf) · kempf@wustl.edu · 314-273-8131
    Contact: Principal Investigator (Murali Chakinala, MD)
  • Columbia University, New York, New York, United States

    Contact: Study coordinator (Kelsey Weddig, RN, BSN) · kw3149@cumc.columbia.edu · 212-305-7470
    Contact: Principal Investigator (Charles Murphy, MD)
  • University of North Carolina, Chapel Hill, Chapel Hill, North Carolina, United States

    Contact: Study coordinator (Karen Smith, RN) · karens@med.unc.edu · 916-966-2790
    Contact: Principal Investigator (Raj Kasthuri, MBBS)
  • The Cleveland Clinic, Cleveland, Ohio, United States

    Contact: Study coordinator (JoAnne Baran, RN) · baranj2@ccf.org · 216-645-1372
    Contact: Study coordinator (Ursula Kuhn) · kuhnu@ohsu.edu · (503) 494-2932
    Contact: Principal Investigator (Joseph Parambil, MD)
    Keith McCrae, MD (Sub-investigator)
    John Carl, MD (Sub-investigator)
  • Oregon Health and Science University, Portland, Oregon, United States

    Contact: Study coordinator (Lori Russell, RN) · watsonlo@ohsu.edu · 503-494-7226
    Contact: Principal Investigator (Mark Chesnutt, MD)
    Claire Kaufman, MD (Sub-investigator)
  • University of Pennsylvania, Philadelphia, Pennsylvania, United States

    Contact: Study coordinator (Isaac Elysee, MS) · isaac.elysee@pennmedicine.upenn.edu · 215-614-0833
    Contact: Principal Investigator (Theodore Drivas, MD)
  • University of Texas Southwestern, Dallas, Texas, United States

    Contact: Study coordinator (Sabrina Akhter Mim) · Sabrina.AkhterMim@UTSouthwestern.edu · 214-645-6092
    Contact: Study coordinator (Anay Cruz) · Anay.Cruz@UTSouthwestern.edu · 214-645-1372
    Contact: Principal Investigator (An Lu, MD)
    John Battaile, MD (Sub-investigator)
  • University of Utah, Salt Lake City, Utah, United States

    Contact: Study coordinator (Kehaunani Tai) · nani.tai@hsc.utah.edu · 801-581-8188
    Contact: Principal Investigator (Kevin Whitehead, MD)
Study leads
  • Nolie Krock, MSc

    Principal Investigator

    Cure HHT

  • Cassi Friday, PhD

    Principal Investigator

    Cure HHT