ALS/MND Natural History Study Data Repository

IsraelRecruiting

Conditions

ALS · PLS · MND (Motor Neurone DIsease) · Kennedy Disease · PMA - Progressive Muscular Atrophy · PBP - Progressive Bulbar Palsy

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations

Loma Linda University Health, Loma Linda, California, United States
Contact: Principal Investigator (Jeffrey Rosenfeld, MD)
Kaiser Permanente, Los Angeles, California, United States
Contact: Study coordinator (Chris Greer) · chris.x.lindgren@kp.org · 323-783-9284
Contact: Principal Investigator (Abel Wu, MD)
University of Florida, Gainesville, Florida, United States
Contact: Study coordinator (Jennifer Steshyn) · Jennifer.Steshyn@neurology.ufl.edu
Contact: Principal Investigator (James Wymer)
Northwestern University, Chicago, Illinois, United States
Contact: Study coordinator (Emma Schmidt) · emma.schmidt@northwestern.edu · 312-503-4362
Contact: Principal Investigator (Senda Ajroud-Driss)
Lahey Clinic, Burlington, Massachusetts, United States
Contact: Study coordinator (Sorieba Fofanah) · Sorieba.Fofanah@lahey.org · 781-744-2958
Contact: Study coordinator (Melo Catia) · catia.s.melo@lahey.org
Contact: Principal Investigator (Medhi Ghasemi, MD)
Henry Ford Health System, Detroit, Michigan, United States
Contact: Study coordinator (Anne Vallis) · avallis1@hfhs.org · 313-916-1364
Contact: Principal Investigator (Ximena Arcila Londono)
Trinity Health Michigan, Grand Rapids, Michigan, United States
Contact: Study coordinator (Nicolina Evola) · nicolina.evola@trinity-health.org · 616-685-6195
Contact: Study coordinator (Katherine Schwass) · Katherine.Schwass@trinity-health.org · 616-685-5437
Contact: Principal Investigator (Melanie G Taylor, MD)
University of Minnesota, Minneapolis, Minnesota, United States
Contact: Study coordinator (Valerie Ferment) · ferm0016@umn.edu · 612-301-1535
Contact: Principal Investigator (David Walk)
Saint Louis University, St Louis, Missouri, United States
Contact: Study coordinator (Katie Forsman) · katie.forsman@health.slu.edu
Contact: Principal Investigator (Ghazala Hayat)
Providence ALS Clinic, Portland, Oregon, United States
Contact: Study coordinator (Tyler Regan) · tyler.regan@providence.org · 503-215-2333
Contact: Principal Investigator (Nicholas Olney)
Thomas Jefferson University, Philadelphia, Pennsylvania, United States
Contact: Study coordinator (Gemma Krautzel) · Gemma.Krautzel@jefferson.edu · 267-582-6061
Contact: Principal Investigator (Hristelina Ilieva, MD)
Temple University Lewis Katz School of Medicine, Philadelphia, Pennsylvania, United States
Contact: Study coordinator (John Furey) · john.furey0001@temple.edu · 267-694-0573
Contact: Principal Investigator (Terry Heiman-Patterson)
University of Pittsburgh, Pittsburgh, Pennsylvania, United States
Contact: Study coordinator (Helen Ismail) · ismailhh@upmc.edu · 412-864-2873
Contact: Principal Investigator (Tawfiq Al-lahham, MD)
Virginia Commonwealth University, Richmond, Virginia, United States
Contact: Study coordinator (Demetrius Carter) · Demetrius.R.Carter@vcuhealth.org
Contact: Principal Investigator (Kelly Gwathmey)
Hadassah Medical Organization, Jerusalem, Israel
Contact: Study coordinator (Michal Zabari) · michalza@hadassah.org.il
Contact: Principal Investigator (Marc Gotkine, MD)
Tel Aviv Medical Center, Tel Aviv, Israel
Contact: Study coordinator (Beatrice Abramovich) · beatricen@tlvmc.gov.il
Contact: Principal Investigator (Vivian Drori, MD)
Centro Clinico NEMO Milano, Milan, Italy
Contact: Study coordinator (Monica Montuori) · monica.montuori@centrocliniconemo.it
Contact: Principal Investigator (Federica Cerri)
Istituti Clinici Scientifici Maugeri SpA, Milan, Italy
Contact: Study coordinator (Camilla Garrè) · camilla.garre@icsmaugeri.it
Contact: Principal Investigator (Christian Lunetta, MD)
Rachele Piras, MD (Sub-investigator)

Study leads

Alexander Sherman
Principal Investigator
Massachusetts General Hospital

View source on ClinicalTrials.gov Contact study team (email)