Swiss Rare Disease Registry (SRDR)
Conditions
Rare Diseases
Simple summaryAI-assisted
This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.
Locations
Kantonsspital Aarau, Pädiatrie, Aarau, Switzerland
Contact: Study coordinator (Henrik Kähler, Prof.)Kantonsspital Aarau, Aarau, Switzerland
Contact: Study coordinator (Beat Müller, Prof.)Center for Rare Diseases, Basel, Basel, Switzerland
Contact: Study coordinator (Andreas Wörner, Dr.med.)Universitäs-Kinderspital beider Basel, UKBB, Basel, Switzerland
Contact: Study coordinator (Andreas Wörner, Dr.med.)Universitätsspital Basel, USB, Basel, Switzerland
Contact: Study coordinator (Mike Recher, Prof.)Centro Malattie Rare della Svizzera Italiana, Bellinzona, Switzerland
Contact: Study coordinator (Colette Balice-Bourgois, PhD)Center for Rare Diseases, Inselspital, Bern, Switzerland
Contact: Study coordinator (Jean-Marc Nuoffer, Prof.)University of Bern, Inselspital Bern, Bern, Switzerland
Contact: Study coordinator (Jean-Marc Nuoffer, Prof.)Center for Rare Diseases, Geneva, Geneva, Switzerland
Contact: Study coordinator (Loredana D'Amato Sizonenko, Dr.med.)Hôpitaux universitaires de Genève, HUG, Geneva, Switzerland
Contact: Study coordinator (Loredana D' Amato Sizonenko, Dr.med.)Center for Rare Diseases, Lausanne, Lausanne, Switzerland
Contact: Study coordinator (Alessandra Strom, PhD)Centre hospitalier universitaire vaudois, CHUV, Lausanne, Switzerland
Contact: Study coordinator (Alessandra Strom, PhD)Kantonsspital St. Gallen, Sankt Gallen, Switzerland
Contact: Study coordinator (Stefan Bilz, PD Dr.)Ostschweizer Kinderspital, Sankt Gallen, Switzerland
Contact: Study coordinator (Dagmar L'Allemand, Prof.)Ostschweizer Zentrum für seltene Krankheiten, Pädiatrie, Sankt Gallen, Switzerland
Contact: Study coordinator (Dagmar L'Allemand, Prof.)Ostschweizer Zentrum für seltene Krankheiten, Sankt Gallen, Switzerland
Contact: Study coordinator (Stefan Bilz, Dr.med.)Center for Rare Diseases, Zurich, Zurich, Switzerland
Contact: Study coordinator (Corinne Rueegger, Dr.med.)Universitäts-Kinderspital Zürich, Kispi, Zurich, Switzerland
Contact: Study coordinator (Corinne Rueegger, Dr.med.)Universitätsklinik Balgrist, Zurich, Switzerland
Contact: Study coordinator (Madlaina Schöni, Dr.med.)Universitätsspital Zürich, USZ, Zurich, Switzerland
Contact: Study coordinator (Corinne Rueegger, Dr.med)
Study leads
Claudia E Kuehni, Prof. MD
Principal Investigator
Institute of Social and Preventive Medicine (ISPM)