ARPKD Database Study

Abroad (travel likely)Recruiting

Conditions

Hepato/Renal Fibrocystic Disease · Autosomal Recessive Polycystic Kidney Disease · Joubert Syndrome · Bardet Biedl Syndrome · Meckel-Gruber Syndrome · Congenital Hepatic Fibrosis · Caroli Syndrome · Oro-Facial-Digital Syndrome Type I · Nephronophthisis · Glomerulocystic Kidney Disease

Simple summaryAI-assisted

This summary is produced by a language model and is experimental. It may be incomplete or inaccurate and is not a substitute for professional medical advice.

Locations

Children's National Hospital, Washington D.C., District of Columbia, United States
Contact: Study coordinator (Ashima Gulati) · agulati2@childrensnational.org · 240-531-6619
Emory, Atlanta, Georgia, United States
Contact: Study coordinator (Laurence Greenbaum) · lgreen6@emory.edu · 404-727-0851
Boston Children's, Boston, Massachusetts, United States
Cincinnati Children's, Cincinnati, Ohio, United States
Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States
Contact: Study coordinator (Jasmine Jaber, MS) · jaberj2@chop.edu · 267-425-5325
Contact: Study coordinator (Lisa M. Guay-Woodford, MD) · guaywoodfl@chop.edu · 267-425-0315
Contact: Principal Investigator (Lisa M. Guay-Woodford, MD)
University of Utah, Salt Lake City, Utah, United States
Contact: Study coordinator (Raoul Nelson) · raoul.nelson@hsc.utah.edu · 801-585-7497

Study leads

Lisa Guay-Woodford, MD
Principal Investigator
Children's Hospital of Philadelphia

View source on ClinicalTrials.gov