Pompe Disease Registry Protocol

Investigational Site Number : 3760002, Beersheba, Israel

Investigational Site Number : 3760001, Haifa, Israel

Investigational Site Number : 3760003, Tel Aviv, Israel

University of Alabama at Birmingham- Site Number : 840106, Birmingham, Alabama, United States

Barrow Neurological Institute- Site Number : 840087, Phoenix, Arizona, United States

Phoenix Children's Hospital- Site Number : 840003, Phoenix, Arizona, United States

University of Arizona- Site Number : 840015, Tucson, Arizona, United States

Arkansas Children's Hospital- Site Number : 840109, Little Rock, Arkansas, United States

University of Arkansas for Medical Sciences- Site Number : 840113, Little Rock, Arkansas, United States

University of California at Irvine- Site Number : 840036, Irvine, California, United States

Loma Linda University- Genetics- Site Number : 840070, Loma Linda, California, United States

Southern California Permanente Medical Group- Site Number : 840108, Los Angeles, California, United States

USC Health Sciences Center Dept of Genetics- Site Number : 840082, Los Angeles, California, United States

UCSF Benioff Children's Hospital - Oakland- Site Number : 840029, Oakland, California, United States

Children's Hospital of Orange County- Site Number : 840074, Orange, California, United States

UC Davis MIND Institute- Site Number : 840010, Sacramento, California, United States

University of California at San Diego- Site Number : 840007, San Diego, California, United States

University of California San Francisco - Parnassus Campus- Site Number : 840051, San Francisco, California, United States

Stanford University Pediatrics- Site Number : 840021, Stanford, California, United States

Children's Hospital Colorado - Aurora- Site Number : 840069, Aurora, Colorado, United States

Yale University School of Medicine- Site Number : 840047, New Haven, Connecticut, United States

Children's National Medical Center - Washington- Site Number : 840067, Washington D.C., District of Columbia, United States

University of Miami- Site Number : 840006, Coral Gables, Florida, United States

University of Florida College of Medicine- Site Number : 840012, Gainesville, Florida, United States

University of Florida Pediatrics Genetics- Site Number : 840121, Jacksonville, Florida, United States

University of Florida-Genetics- Site Number : 840096, Tampa, Florida, United States

Emory University School of Medicine- Human Genetics- Site Number : 840060, Decatur, Georgia, United States

University of Colorado at Denver Genetics- Site Number : 840068, Aurora, Illinois, United States

Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840011, Chicago, Illinois, United States

Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840013, Chicago, Illinois, United States

Rush University Medical Center Genetics- Site Number : 840079, Chicago, Illinois, United States

Indianapolis University School of Medicine- Site Number : 840027, Indianapolis, Indiana, United States

University of Iowa- Site Number : 840032, Iowa City, Iowa, United States

University of Kansas Medical Center- Site Number : 840020, Kansas City, Kansas, United States

University of Louisville - Health Sciences Center- Site Number : 840030, Louisville, Kentucky, United States

Maine Medical Partners Pediatric Specialty Care- Site Number : 840064, Portland, Maine, United States

John Hopkins- Site Number : 840044, Baltimore, Maryland, United States

Massachusetts General Hospital-Genetics- Site Number : 840062, Boston, Massachusetts, United States

Boston Children's Hospital- Site Number : 840092, Boston, Massachusetts, United States

Baystate Medical Center- Site Number : 840002, Springfield, Massachusetts, United States

University of Michigan Pediatrics- Site Number : 840107, Ann Arbor, Michigan, United States

Children's Hospital of Michigan- Site Number : 840066, Detroit, Michigan, United States

Corewell Health - Helen DeVos Children's Hospital (HDVCH)- Site Number : 840019, Grand Rapids, Michigan, United States

Infusion Associates - Grand Rapids- Site Number : 840050, Grand Rapids, Michigan, United States

Children's Hospitals and Clinics of Minnesota- Site Number : 840046, Minneapolis, Minnesota, United States

Children's Hospitals and Clinics of Minnesota- Site Number : 840114, Minneapolis, Minnesota, United States

M Health Fairview University of Minnesota Medical Center - West Bank- Site Number : 840035, Minneapolis, Minnesota, United States

M Health Fairview University of Minnesota Medical Center - West Bank- Site Number : 840076, Minneapolis, Minnesota, United States

University of Missouri Health System Department of Genetics- Site Number : 840031, Columbia, Missouri, United States

Children's Mercy Adelle Hall Campus- Site Number : 840063, Kansas City, Missouri, United States

Washington University- Site Number : 840100, St Louis, Missouri, United States

University of Nebraska Medical Center- Site Number : 840084, Omaha, Nebraska, United States

Children's Specialty Center - Las Vegas- Site Number : 840008, Las Vegas, Nevada, United States

Cooper Health Center- Site Number : 840098, Camden, New Jersey, United States

Hackensack Meridian Health - Hackensack University Medical Center- Site Number : 840101, Hackensack, New Jersey, United States

Atlantic Health System- Site Number : 840099, Morristown, New Jersey, United States

Saint Peter's University Hospital - New Brunswick- Site Number : 840016, New Brunswick, New Jersey, United States

St. Joseph's Regional Medical Center - Paterson- Site Number : 840057, Paterson, New Jersey, United States

NYU Langone Health - Perlmutter Cancer Center - Huntington- Site Number : 840040, Huntington, New York, United States

Northwell Health- Site Number : 840102, New Hyde Park, New York, United States

Icahn School of Medicine at Mount Sinai- Site Number : 840005, New York, New York, United States

Metropolitan Hospital Center- Site Number : 840110, New York, New York, United States

Columbia University Irving Medical Center- Site Number : 840125, New York, New York, United States

University of Rochester Medical Center- Site Number : 840105, Rochester, New York, United States

SUNY Upstate Medical University - Site Number : 840052, Syracuse, New York, United States

New York Medical College- Site Number : 840039, Valhalla, New York, United States

Carolinas Medical Center Hospital- Site Number : 840065, Charlotte, North Carolina, United States

Duke University Medical Center Genetics Dept- Site Number : 840037, Durham, North Carolina, United States

University of Cincinnati Medical Center- Site Number : 840124, Cincinnati, Ohio, United States

University Hospitals Cleveland Medical Center- Site Number : 840119, Cleveland, Ohio, United States

Cleveland Clinic - Cleveland- Site Number : 840048, Cleveland, Ohio, United States

Nationwide Children's Hospital- Site Number : 840091, Columbus, Ohio, United States

LSD Data Registry Site LLC- Site Number : 840094, Dublin, Ohio, United States

Oregon Health & Science University (OHSU)- Site Number : 840038, Portland, Oregon, United States

Oregon Health & Science University (OHSU)- Site Number : 840080, Portland, Oregon, United States

Oregon Health & Science University (OHSU)- Site Number : 840095, Portland, Oregon, United States

Penn State Health Milton South Hershey Medical Center- Site Number : 840061, Hershey, Pennsylvania, United States

Penn State Health Milton South Hershey Medical Center- Site Number : 840126, Hershey, Pennsylvania, United States

Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089, Philadelphia, Pennsylvania, United States

Children's Hospital of Philadelphia- Site Number : 840034, Philadelphia, Pennsylvania, United States

UPMC Children's Hospital of Pittsburgh- Site Number : 840014, Pittsburgh, Pennsylvania, United States

UPMC Children's Hospital of Pittsburgh- Site Number : 840023, Pittsburgh, Pennsylvania, United States

Rhode Island Hospital Genetics- Site Number : 840053, Providence, Rhode Island, United States

Greenwood Genetic Center - Greenville- Site Number : 840055, Greenville, South Carolina, United States

Vanderbilt University Medical Center Diagnostic Lab- Site Number : 840049, Nashville, Tennessee, United States

Baylor Institute of Metabolic Disease- Site Number : 840058, Dallas, Texas, United States

Cook Children's Medical Center- Site Number : 840024, Fort Worth, Texas, United States

University of Utah Department of Medical Genetics- Site Number : 840043, Salt Lake City, Utah, United States

University of Virginia School of Medicine-Pediatrics- Site Number : 840078, Charlottesville, Virginia, United States

O & O Alpan- Site Number : 840025, Fairfax, Virginia, United States

Children's Hospital of The King's Daughters- Site Number : 840072, Norfolk, Virginia, United States

Seattle Children's Hospital- Site Number : 840028, Seattle, Washington, United States

University of Washington Medical Center- Site Number : 840059, Seattle, Washington, United States

Mary Bridge Children's Hospital & Health Center- Site Number : 840115, Tacoma, Washington, United States

Children's Wisconsin- Site Number : 840054, Milwaukee, Wisconsin, United States

Investigational Site Number : 153195, Caba, Buenos Aires, Buenos Aires, Argentina

Investigational Site Number : 152218, CABA, Buenos Aires, Argentina

Investigational Site Number : 153194, Buenos Aires, Argentina

Investigational Site Number : 153032, Buenos Aires, Argentina

Investigational Site Number : 036013, Westmead, New South Wales, Australia

Investigational Site Number : 151069, Westmead, New South Wales, Australia

Investigational Site Number : 154087, Brisbane, Queensland, Australia

Investigational Site Number : 152096, Brisbane, Queensland, Australia

Investigational Site Number : 151015, Murdoch, Western Australia, Australia

Investigational Site Number : 150722, Antwerp, Belgium

Investigational Site Number : 154298, Bruges, Belgium

Investigational Site Number : 150684, Brussels, Belgium

Investigational Site Number : 056010, Brussels, Belgium

Investigational Site Number : 152072, Edegem, Belgium

Investigational Site Number : 152295, Ghent, Belgium

Investigational Site Number : 153179, Gosselies, Belgium

Investigational Site Number : 151668, Leuven, Belgium

Investigational Site Number : 152126, Leuven, Belgium

Hospital Geral de Fortaleza - HGF- Site Number : 076013, Fortaleza, Ceará, Brazil

Hospital Universitario Walter Cantidio- Site Number : 076011, Fortaleza, Ceará, Brazil

Hospital Geral Universitario de Cuiaba- Site Number : 076003, Cuiabá, Mato Grosso, Brazil

Hospital de Clinicas de Porto Alegre- Site Number : 076008, Porto Alegre, Rio Grande do Sul, Brazil

Hospital das Clinicas da Faculdade de Medicina de Ribeirao Preto- Site Number : 076009, Ribeirão Preto, São Paulo, Brazil

Instituto Fernandes Figueira - FIOCRUZ- Site Number : 076001, Rio de Janeiro, Brazil

Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 076002, São Paulo, Brazil

Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076004, São Paulo, Brazil

Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076007, São Paulo, Brazil

Investigational Site Number : 100001, Sofia, Bulgaria

Investigational Site Number : 124014, Calgary, Alberta, Canada

Investigational Site Number : 124002, Edmonton, Alberta, Canada

Investigational Site Number : 124007, Lethbridge, Alberta, Canada

Investigational Site Number : 124010, Vancouver, British Columbia, Canada

Investigational Site Number : 124011, Vancouver, British Columbia, Canada

Investigational Site Number : 124019, Winnipeg, Manitoba, Canada

Investigational Site Number : 124022, Moncton, New Brunswick, Canada

Investigational Site Number : 124021, London, Ontario, Canada

Investigational Site Number : 124018, Ottawa, Ontario, Canada

Investigational Site Number : 124006, Toronto, Ontario, Canada

Investigational Site Number : 124004, Montreal, Quebec, Canada

Investigational Site Number : 124001, Sherbrooke, Quebec, Canada

Investigational Site Number : 152002, Punta Arenas, Chile

Investigational Site Number : 152001, Santiago, Chile

Investigational Site Number : 152380, Beijing, China

Investigational Site Number : 153202, Beijing, China

Investigational Site Number : 153203, Beijing, China

Investigational Site Number : 152379, Guangzhou, China

Investigational Site Number : 152381, Jinan, China

Investigational Site Number : 157250, Jinan, China

Investigational Site Number : 152382, Shanghai, China

Investigational Site Number : 152356, Shanghai, China

Investigational Site Number : 170001, Bogotá, Colombia

Investigational Site Number : 1910001, Zagreb, Croatia

Investigational Site Number : 1910002, Zagreb, Croatia

Investigational Site Number : 150809, Prague, Czechia

Investigational Site Number : 151229, Copenhagen, Denmark

Investigational Site Number : 250010, Bordeaux, France

Investigational Site Number : 250012, Brest, France

Investigational Site Number : 250003, Bron, France

Investigational Site Number : 250007, Bron, France

Investigational Site Number : 250009, Caen, France

Investigational Site Number : 250015, La Tronche, France

Investigational Site Number : 250008, Lille, France

Investigational Site Number : 250002, Marseille, France

Investigational Site Number : 250017, Nancy, France

Investigational Site Number : 250019, Nantes, France

Investigational Site Number : 250005, Nice, France

Investigational Site Number : 250011, Nîmes, France

Investigational Site Number : 250001, Paris, France

Investigational Site Number : 250004, Paris, France

Investigational Site Number : 250018, Saint-Priest-en-Jarez, France

Investigational Site Number : 250016, Strasbourg, France

Investigational Site Number : 250014, Toulouse, France

Investigational Site Number : 250006, Tours, France

Investigational Site Number : 25013, Vannes, France

Investigational Site Number : 152041, Berlin, Germany

Investigational Site Number : 151686, Berlin, Germany

Investigational Site Number : 152293, Berlin, Germany

Investigational Site Number : 152234, Bochum, Germany

Investigational Site Number : 152200, Bonn, Germany

Investigational Site Number : 152108, Freiburg im Breisgau, Germany

Investigational Site Number : 154150, Giessen, Germany

Investigational Site Number : 152045, Halle, Germany

Investigational Site Number : 154215, Hamburg, Germany

Investigational Site Number : 150031, Mainz, Germany

Investigational Site Number : 152075, Munich, Germany

Investigational Site Number : 152299, Münster, Germany

Investigational Site Number : 300001, Thessaloniki, Greece

Investigational Site Number : 344001, Kowloon, Hong Kong

Investigational Site Number : 3480009, Debrecen, Hungary

Investigational Site Number : 3480007, Nyiregyháza, Hungary

Investigational Site Number : 3480011, Pécs, Hungary

Investigational Site Number : 356003, Ahmedabad, India

Investigational Site Number : 356001, Kolkata, India

Investigational Site Number : 3560004, Secunderabad, India

Investigational Site Number : 356002, Vellore, India

Investigational Site Number : 360001, Jakarta, Indonesia

Investigational Site Number : 380020, Gussago, Brescia, Italy

Investigational Site Number : 380014, Cona, Ferrara, Italy

Investigational Site Number : 380005, Florence, Firenze, Italy

Investigational Site Number : 380007, Milan, Milano, Italy

Investigational Site Number : 380011, Padua, Padova, Italy

Investigational Site Number : 380015, Rome, Roma, Italy

Investigational Site Number : 380008, Brescia, Italy

Investigational Site Number : 380006, Cagliari, Italy

Investigational Site Number : 380013, Messina, Italy

Investigational Site Number : 380016, Milan, Italy

Investigational Site Number : 380009, Monza, Italy

Investigational Site Number : 380019, Naples, Italy

Investigational Site Number : 380002, Padova, Italy

Investigational Site Number : 380003, Pavia, Italy

Investigational Site Number : 157218, Pisa, Italy

Investigational Site Number : 380012, Roma, Italy

Investigational Site Number : 380017, Torino, Italy

Investigational Site Number : 380001, Udine, Italy

Investigational Site Number : 392105, Ginowan, Okinawa, Japan

Investigational Site Number : 392106, Kyoto, Japan

Investigational Site Number : 4000001, Amman, Jordan

Investigational Site Number : 154225, Kuwait City, Kuwait

Investigational Site Number : 4220004, Beirut, Lebanon

Investigational Site Number : 458001, Kuala Lumpur, Malaysia

Investigational Site Number : 458002, Kuala Lumpur, Malaysia

Investigational Site Number : 152029, Rotterdam, Netherlands

Investigational Site Number : 154264, Karachi, Pakistan

Investigational Site Number : 154266, Lahore, Pakistan

Investigational Site Number : 608001, City of Muntinlupa, Philippines

Investigational Site Number : 150575, Warsaw, Poland

Investigational Site Number : 620008, Coimbra, Portugal

Investigational Site Number : 620006, Lisbon, Portugal

Investigational Site Number : 154099, Bucharest, Romania

Investigational Site Number : 643002, Moscow, Russia

Investigational Site Number : 682001, Al Qaţīf, Saudi Arabia

Investigational Site Number : 682004, Mecca, Saudi Arabia

Investigational Site Number : 6880001, Belgrade, Serbia

Investigational Site Number : 702001, Singapore, Singapore

Investigational Site Number : 703001, Bratislava, Slovakia

Investigational Site Number : 153178, Yangsan, Gyeongsangnam-do, South Korea

Investigational Site Number : 153180, Seoul, Seoul-teukbyeolsi, South Korea

Investigational Site Number : 153196, Seoul, Seoul-teukbyeolsi, South Korea

Investigational Site Number : 153192, Seoul, Seoul-teukbyeolsi, South Korea

Investigational Site Number : 151149, Seoul, Seoul-teukbyeolsi, South Korea

Investigational Site Number : 153176, Seoul, Seoul-teukbyeolsi, South Korea

Investigational Site Number : 153222, Seoul, Seoul-teukbyeolsi, South Korea

Investigational Site Number : 153191, Daejeon, South Korea

Investigational Site Number : 153212, Seoul, South Korea

Investigational Site Number : 151500, Chiayi City, Taiwan

Investigational Site Number : 154093, Chiayi City, Taiwan

Investigational Site Number : 152152, Hualien City, Taiwan

Investigational Site Number : 152244, Kaohsiung City, Taiwan

Investigational Site Number : 152246, Kaohsiung City, Taiwan

Investigational Site Number : 151534, New Taipei City, Taiwan

Investigational Site Number : 151179, Taichung, Taiwan

Investigational Site Number : 151181, Taichung, Taiwan

Investigational Site Number : 153248, Tainan, Taiwan

Investigational Site Number : 152153, Tainan, Taiwan

Investigational Site Number : 151182, Taipei, Taiwan

Investigational Site Number : 152321, Taipei, Taiwan

Investigational Site Number : 152226, Taipei, Taiwan

Investigational Site Number : 153158, Tao Yuan County, Taiwan

Investigational Site Number : 764002, Bangkok, Thailand

Investigational Site Number : 764003, Bangkok, Thailand

Investigational Site Number : 764004, Bangkok, Thailand

Investigational Site Number : 764001, Bangkok, Thailand

Investigational Site Number : 764005, Khon Kaen, Thailand

Investigational Site Number : 7840001, Dubai, United Arab Emirates

Investigational Site Number : 151340, Cambridge, Cambridgeshire, United Kingdom

Investigational Site Number : 152334, Cardiff, Cardiff [Caerdydd Gb-crd], United Kingdom

Investigational Site Number : 152287, Birmingham, England, United Kingdom

Investigational Site Number : 154240, Birmingham, England, United Kingdom

Investigational Site Number : 151123, London, England, United Kingdom

Investigational Site Number : 152156, Glasgow, Glasgow City, United Kingdom

Investigational Site Number : 151646, London, London, City of, United Kingdom

Investigational Site Number : 150303, London, London, City of, United Kingdom

Investigational Site Number : 150964, Salford, Manchester, United Kingdom

Investigational Site Number : 150455, Manchester, United Kingdom

Investigational Site Number : 152087, Newcastle upon Tyne, United Kingdom

Investigational Site Number : 154212, Hanoi, Vietnam

Investigational Site Number : 704002, Ho Chi Minh City, Vietnam