Skip to main content
TrialFinder
ResourcesAbout
ⓘNot medical advice.▾

This site is for general information only and is not medical advice, diagnosis, or treatment. Always talk to a qualified clinician before medical decisions. TrialFinder is not affiliated with trial sponsors or healthcare providers.

Privacy policyTerms of useAccessibilityFAQFeedback
Support the project (opens in a new tab)

We use functional cookies to improve your experience. See our Privacy policy.

Trial data comes from ClinicalTrials.gov (US) and is shown for information only.

In memory of Dov Korn ❤️

Epilepsy Clinical Trials: Seizure Type, Drug Resistance, and Recruiting Studies | TrialFinder
HomeResourcesEpilepsy Clinical Trials: How Seizure Type and Drug Resistance Shape Eligibility

Back to Resources

Published · September 21, 2026

Epilepsy Clinical Trials: How Seizure Type and Drug Resistance Shape Eligibility

Epilepsy means a lasting tendency to have seizures. It is not one condition. Two people with "epilepsy" on a chart can have different seizure types, different epilepsy syndromes, and different responses to medication. Those details usually decide which treatments are standard and which clinical trials may fit.

The major split is between focal (partial) seizures and generalized seizures. Focal seizures start in one area of the brain. Generalized seizures involve both sides from the start. They are worked up differently, treated with different first-line drugs, and listed in different trials. A report that only says "seizures" or "epilepsy" is often not enough to judge eligibility.

About one third of people with epilepsy have drug-resistant (refractory) epilepsy: seizures continue despite two appropriately chosen, tolerated anti-seizure medications. That is the ILAE definition clinicians use. Drug-resistant epilepsy is the main population many epilepsy trials recruit, but newly diagnosed epilepsy and named pediatric syndromes have their own study lists too.

A clinical trial is one option to raise with the treating neurologist. It is not automatically better than approved treatment. The useful question is whether a given study matches this seizure type, syndrome, medication history, and whether devices, diet, or surgery are already on the table.

Focal and generalized epilepsy are not interchangeable

Seizure type and epilepsy syndrome decide both standard treatment and which trials fit. A listing written for focal epilepsy is not the same as one for generalized epilepsy or for a mixed picture still being classified.

Focal (partial) epilepsy includes seizures that start in a defined brain region. Many adult trials name focal epilepsy or focal seizures in the title or condition list. Surgery evaluation and some device studies also sit mainly in focal disease when seizures stay localized.

Generalized epilepsy includes syndromes such as absence epilepsy, juvenile myoclonic epilepsy, and generalized tonic-clonic seizures from onset. Trials in this group name generalized epilepsy or specific generalized syndromes. The drug choices and trial cutoffs differ from focal lists.

When seizure type is still unknown or mixed, eligibility has to be read carefully. Some protocols accept broad "epilepsy" labels; others require EEG classification or syndrome documentation that may not appear on the public listing.

The plain-language clinical trial glossary can help with terms such as eligibility, phase, and standard of care.

Pediatric syndromes with their own trial paths

Parents and caregivers often search by syndrome name, not only by "epilepsy." Two syndromes show up often in pediatric trial lists:

Dravet syndrome. A severe genetic epilepsy that usually begins in infancy or early childhood. Many dedicated drug trials have enrolled Dravet syndrome, including paths that led to approvals for fenfluramine and cannabidiol in defined settings. Approvals and access vary by country.

Lennox-Gastaut syndrome (LGS). A childhood-onset syndrome with multiple seizure types and developmental impact. It has its own trial lists and regulatory histories, again including cannabidiol in specified populations.

A syndrome label on a report is not interchangeable with "focal epilepsy" or "drug-resistant epilepsy" alone. The neurologist can say whether formal syndrome criteria are met and which trials actually match.

Beyond medication: devices, diet, and surgery evaluation

Epilepsy trials are not only drug studies. When seizures persist, neurologists may discuss:

Neuromodulation devices. Vagus nerve stimulation (VNS), responsive neurostimulation (RNS), and deep brain stimulation (DBS) are options in selected drug-resistant cases. Trials may compare devices, settings, or combinations with medication.

Dietary therapies. Ketogenic diet and modified Atkins diet are established options for some people, especially when medications are not enough. Studies may test diet protocols, adherence support, or diet alongside drugs.

Epilepsy surgery evaluation. When focal seizures come from a single region, resective surgery or other procedures may be considered. Trials sometimes study imaging, monitoring, or surgical pathways rather than a pill alone.

Because these approaches appear on registries too, the trial list below is broader than medication-only studies.

Recruiting epilepsy trials

Questions to ask a neurologist

A short list is usually enough:

  • What is the exact seizure type on EEG and clinic notes (focal, generalized, or unknown)?
  • Is there a named epilepsy syndrome, such as Dravet or Lennox-Gastaut?
  • Does this epilepsy count as drug-resistant under the two-medication ILAE definition?
  • Which anti-seizure medications were tried, at what doses, and for how long?
  • Were devices (VNS, RNS, DBS), ketogenic or modified Atkins diet, or surgery evaluation already discussed?
  • For this profile, what is approved or considered standard where I live?
  • Are there recruiting trials that match this exact profile, and how do they compare to standard care?

Want to prepare for the appointment? The guide How to Talk to Your Doctor About Clinical Trials explains how to raise the topic and what to bring with you.

Sources

  • NINDS: Epilepsy information page
  • ILAE definition of drug-resistant epilepsy
  • Recruiting-trial facts on this page come from ClinicalTrials.gov and are shown through TrialFinder listings.

Further reading

How to Talk to Your Doctor About Clinical Trials What questions should you ask your doctor about clinical trials? A step-by-step guide for patients: when to bring it up, what to prepare, and what to do after.

Key Clinical Trial Terms Plain-language explanations of terms patients and families encounter during the clinical trial process.

Start Here: How to Search for Clinical Trials on TrialFinder A step-by-step guide to finding clinical trials on TrialFinder. Learn how to search by condition, use filters, and understand your results.

Before You Join a Clinical Trial: Screening, Informed Consent, and Red Flags What happens between finding a clinical trial and your first visit: screening, the informed consent form, the questions worth asking, common fears answered plainly, and the red flags that should make you walk away.

Osimertinib for Uncommon EGFR Mutations: What the Evidence Shows Osimertinib (Tagrisso) for uncommon EGFR mutations such as G719X, S768I, L861Q, and exon 20 insertions: what the evidence covers, plus active clinical trials.

Clinical Trials in Mental Health: What Patients and Families Should Know Mental health clinical trials can test medications, psychotherapy, TMS devices, digital therapeutics, and psychedelic-assisted treatment. Here is how they differ from cancer trials, and how to start looking.

The Reminder Moderna and Merck's Personalized mRNA Cancer Vaccine Gives Us About Clinical Trials Moderna and Merck's personalized mRNA cancer vaccine just hit its Phase 3 endpoints in melanoma. Here's what it teaches us about the value of joining clinical trials.

Breakthrough in Pancreatic Cancer: Compassionate Use for KRAS Mutations Explained The new drug Daraxonrasib showed impressive survival results for eligible pancreatic cancer patients. It is currently available via compassionate use. Here is what you need to know.

What is a Clinical Trial? (It's More Than You Think) How clinical trials work, why they matter, and what patients should know before considering one.

Not a Perfect Match? Tips for Getting Into a Clinical Trial Anyway A rejection from a clinical trial doesn't have to be the end. Practical tips for patients and caregivers who hit a wall.

How to Talk About Clinical Trials with a Family Member A guide for caregivers on introducing clinical trials to a loved one who is hesitant, tired, or afraid.

Share this post
  •  

This article was written by a patient advocate based on personal experience, not by a medical professional. It is not medical advice. Consult your doctor before making any medical decisions.

Looking for a clinical trial?

Search trials

Trial data from ClinicalTrials.gov. For information only.

This list is limited to recruiting studies whose title or listed conditions name epilepsy or a related seizure disorder. A seizure-type or population heading appears only when that term is named in those same fields. Exact syndrome or device details are often missing there.

Seizure type

Approach

Population

Loading matching clinical trials

Trials whose title or listed conditions name Dravet syndrome, Lennox-Gastaut syndrome, or related pediatric syndromes

  • Investigate Efficacy and Safety of Carisbamate as Adjunctive Treatment for Seizures Associated With LGS in Children and Adults

    Seizures · Lennox Gastaut Syndrome

    16 countriesRecruitingPhase 3
    Simple summary·Eligibility check·Doctor guide
    Palo Alto, United States · Jacksonville, United States
  • A Clinical Study to Evaluate the Safety and Efficacy of ETX101 in Infants and Children With SCN1A-Positive Dravet Syndrome

    Dravet Syndrome

    3 countriesRecruitingPhase 1/2
    Simple summary·Eligibility check·Doctor guide
    San Francisco, United States · Aurora, United States
  • A Study of EPX-100 (Clemizole Hydrochloride) in Participants With Dravet Syndrome

    Dravet Syndrome

    10 countriesRecruitingPhase 3
    Simple summary·Eligibility check·Doctor guide
    Birmingham, United States · Little Rock, United States
  • An Efficacy and Safety Study of Clemizole HCl in Patients With Lennox-Gastaut Syndrome

    Lennox Gastaut Syndrome

    7 countriesRecruitingPhase 3
    Simple summary·Eligibility check·Doctor guide
    Little Rock, United States · Orange, United States
  • ASCEND: Safety and Tolerability of ION337 for the Treatment of Dravet Syndrome

    Dravet Syndrome

    2 countriesRecruitingPhase 1/2
    Simple summary·Eligibility check·Doctor guide
    Ann Arbor, United States · Rochester, United States
  • A Double-blind Study Evaluating the Efficacy, Safety, and Tolerability of Zorevunersen in Patients With Dravet Syndrome

    Dravet Syndrome

    8 countriesRecruitingPhase 3
    Simple summary·Eligibility check·Doctor guide
    Phoenix, United States · Little Rock, United States
  • Comparative Effectiveness of Palliative Surgery Versus Additional Anti-Seizure Medications for Lennox-Gastaut Syndrome

    Lennox Gastaut Syndrome

    United StatesRecruiting
    Simple summary·Eligibility check·Doctor guide
    Chicago, United States · Ann Arbor, United States
  • The FINTEPLA as an Anti-SUDEP Therapy in Dravet Syndrome Project

    Dravet Syndrome

    United StatesRecruitingPhase 4
    Simple summary·Eligibility check·Doctor guide
    Houston, United States
  • A Study to Evaluate the Safety and Pharmacokinetics of RC001 in Children With Dravet Syndrome

    Dravet Syndrome (DS)

    ChinaRecruitingEarly Phase 1
    Simple summary·Eligibility check·Doctor guide
    Guangzhou, China
  • Assessment of Safety of the Use of Fenfluramine in Children With Dravet Syndrome Under 24 Months of Age

    Dravet Syndrome (DS) · Children Under 2 Years

    United StatesRecruitingPhase 4
    Simple summary·Eligibility check·Doctor guide
    Aurora, United States
  • A PET-MRI Study of Serotoninergic Brainstem Pathway in Patients With Dravet Syndrome

    Epilepsy · Dravet Syndrome · Drug Resistant Epilepsy

    FranceRecruiting
    Simple summary·Eligibility check·Doctor guide
    Bron, France
  • The Children's Adaptive Deep Brain Stimulation for Epilepsy Trial

    Lennox Gastaut Syndrome (LGS)

    United KingdomRecruiting
    Simple summary·Eligibility check·Doctor guide
    London, United Kingdom
  • Multicentre Real-life Follow-up Study of Rare Epileptic Syndromes in Children and Adolescents

    Epilepsy · West Syndrome · Dravet Syndrome

    FranceRecruiting
    Simple summary·Eligibility check·Doctor guide
    Angers, France · Bordeaux, France
  • Longitudinal Study of Phenotypic and Developmental Severity in Patients With Dravet Syndrome With SCN1A Gene Mutation

    Dravet Syndrome

    FranceRecruiting
    Simple summary·Eligibility check·Doctor guide
    Paris, France
  • BMB-101 in Absence Epilepsy and DEE

    Absence Epilepsy · Jeavons Syndrome · Dravet Syndrome

    AustraliaRecruitingPhase 2
    Simple summary·Eligibility check·Doctor guide
    Randwick, Australia · Herston, Australia
  • A Study to Prevent Infantile Spasms Relapse

    Infantile Spasms · Infantile Epileptic Spasms Syndrome · West Syndrome

    United StatesRecruitingPhase 2
    Simple summary·Eligibility check·Doctor guide
    Los Angeles, United States
  • GABA Biomarkers in Dravet Syndrome

    Dravet Syndrome

    United StatesRecruiting
    Simple summary·Eligibility check·Doctor guide
    Fort Worth, United States

Trials whose title or listed conditions name focal or partial epilepsy

  • Noninvasive Pre-surgical Evaluation of Patients With Focal Epilepsy and Establishment of a Normative Imaging Database

    Epilepsy

    United StatesRecruiting
    Simple summary·Eligibility check·Doctor guide
    Bethesda, United States
  • Study Evaluating the Efficacy and Safety of RAP-219 in Adult Participants With Focal Seizures FOCUS-1

    Focal Seizure · Epilepsy · Focal Epilepsy

    United StatesRecruitingPhase 3
    Simple summary·Eligibility check·Doctor guide
    Palmdale, United States · Gulf Breeze, United States
  • Surgery as a Treatment for Medically Intractable Epilepsy

    Epilepsy · Epilepsy, Temporal Lobe · Partial Epilepsy

    United StatesRecruiting
    Simple summary·Eligibility check·Doctor guide
    Bethesda, United States

Open the full TrialFinder search for Epilepsy